Gout

Anything goes in The Snug, the GD's rebellious little brother. An off-topic den of iniquity for non-football/news related musings.

Moderators: bristolhammerfc, sicknote, -DL-, Rio, Gnome, chalks, the pink palermo

Gout

Postby brothernero on Sat Apr 28, 2018 6:43 pm

I have been having Gout attacks now for over a decade. But they are getting much worse and way to frequent, It, has got so bad that my attacks happen about 70% of the year.

I have it at the moment in 5 different places on my body and the pain is unbearable. It's getting to the point where I cant function or have any kind of normal life..I cant even attempt to stand up, let alone try to walk.

I have seen my GP so many times about this and also Gout specialists, But they cant seem to do anything.

Do any of you suffer from this, know anyone or have any advice?


I have various other health issues as well, but the Gout is getting so bad, that I think I would happily lose both my legs. The pain is just getting to much to take.
brothernero
 
Posts: 1421
Joined: Sun Sep 10, 2017 3:03 pm
Location: Essex

Re: Gout

Postby Phil S on Sat Apr 28, 2018 7:27 pm

I had it once 16 years ago, middle toe, it's excruciating.

Took the tablets for a year or so and had some blood tests and the uric acid level had gone down, not troubled since.

Diet would hep?
are you overweight?
User avatar
Phil S
 
Posts: 4411
Joined: Mon May 24, 2004 2:57 pm
Location: Sarfend

Re: Gout

Postby Cuenca 'ammer on Sat Apr 28, 2018 7:33 pm

https://www.webmd.com/arthritis/underst ... -treatment

am sure that you have all this knowledge at your finger tips..

I know that our good old mate Romford suffered tremendously...maybe drop him a line ?????? see if he had any luck....

Wish you well mate, it's a b*stard.........
User avatar
Cuenca 'ammer
ex 'ouston 'ammer
 
Posts: 23865
Joined: Thu Dec 05, 2002 5:19 pm
Location: Journey to the dead of night. High on a hill in Eldorado

Re: Gout

Postby brothernero on Sat Apr 28, 2018 7:41 pm

Cheers feller's. I thought Romford (sadly) had quit kumb?


Since my other health issues began, my weight has increased. Thing is I do not smoke and do not drink alcohol at all. I have tried to cut out as much sugar as I can.

Seems like the various medication I take for Gout, now no longer works.

All I'm left with is Co-codamol.
brothernero
 
Posts: 1421
Joined: Sun Sep 10, 2017 3:03 pm
Location: Essex

Re: Gout

Postby Los Martillos on Sat Apr 28, 2018 8:04 pm

I had a terrible attack about 20 years ago, ankle elbow and big toe. I had pain killers, anti-inflammatries and a drug called allopurinol.
The drug started in doses of 600mgs, but is now levelled out at 300 and my uric acid level is stable. One of the most painful things you can get. i remember not being able to stand up let alone walk some days.
Good luck getting it sorted
User avatar
Los Martillos
 
Posts: 6246
Joined: Mon May 23, 2005 8:20 pm
Location: Hook, Line, Sinker, Copy of the Angling Times

Re: Gout

Postby brothernero on Sat Apr 28, 2018 8:12 pm

Los Martillos wrote:I had a terrible attack about 20 years ago, ankle elbow and big toe. I had pain killers, anti-inflammatries and a drug called allopurinol.
The drug started in doses of 600mgs, but is now levelled out at 300 and my uric acid level is stable. One of the most painful things you can get. i remember not being able to stand up let alone walk some days.
Good luck getting it sorted



Thank you Los Martilos.

I was on Allopurinol for about 8 years or so, then my last Gout specialist told me to stop taking it as my body has become immune to it.
brothernero
 
Posts: 1421
Joined: Sun Sep 10, 2017 3:03 pm
Location: Essex

Re: Gout

Postby Cuenca 'ammer on Sat Apr 28, 2018 8:31 pm

brothernero wrote:Cheers feller's. I thought Romford (sadly) had quit kumb?


Since my other health issues began, my weight has increased. Thing is I do not smoke and do not drink alcohol at all. I have tried to cut out as much sugar as I can.

Seems like the various medication I take for Gout, now no longer works.

All I'm left with is Co-codamol.


He has but I am pretty sure that Bamber Gasgoine would know how to get in touch with him as (if I read it correctly) the lads who run the boat trips work with the lads who run the coaches and I am sure that Romford would be in touch with those guys.

These drugs, called uricosurics, include probenecid (Probalan) and lesinurad (Zurampic). Uricosuric drugs improve your kidneys' ability to remove uric acid from your body. This may lower your uric acid levels and reduce your risk of gout, but the level of uric acid in your urine is increased. Side effects include a rash, stomach pain and kidney stones. Lesinurad can be taken only along with an XOI.

But I am sure that you have done your research on all the things that might help you.

Trouble is that like here, a load of the drugs possess side effects which may or may not be quite as bad as the problem that it is trying to alleviate...
User avatar
Cuenca 'ammer
ex 'ouston 'ammer
 
Posts: 23865
Joined: Thu Dec 05, 2002 5:19 pm
Location: Journey to the dead of night. High on a hill in Eldorado

Re: Gout

Postby Tenbury on Sat Apr 28, 2018 10:06 pm

brothernero wrote:



Seems like the various medication I take for Gout, now no longer works.

All I'm left with is Co-codamol.


I'm sorry to add this, but be carefull, with codeine based painkillers too. Long-term,high dose, it's worth taking a supplement of something like Fybogel, it'll take better care of you'we digestive system, you don',t need to add to your grief.
Best wishes mate.
User avatar
Tenbury
 
Posts: 2049
Joined: Wed Apr 13, 2016 3:28 pm
Location: Too near Kidderminster

Re: Gout

Postby Clucking Bell on Sun Apr 29, 2018 1:54 am

I used to get it but, touch wood, haven't had an attack for about four years.

My doctor monitored my uric acid levels for three months and I had to make quite a few changes to my diet. Basically, I can only eat meat or fish a couple times a week and large quantities of beer are out. I went pretty much vegan a year ago and this has helped and when I do get pissed now, I do it on gin :D

Meds-wise, I take 300 mg of allopurinol a couple times a week, just in case, and I have colchicine in a container on my key fob in case of an attack.

My doctor also says that attacks usually get worse over time unless you make significant lifestyle changes and if colchicine and naproxen don't sort the attack out, you need a steroid injection directly into the joint.
User avatar
Clucking Bell
 
Posts: 4413
Joined: Tue Jan 10, 2006 6:32 am
Location: Make piss ..... check ..... crossed arms .... check .... wife hates me ... result!!

Re: Gout

Postby brothernero on Sun Apr 29, 2018 1:35 pm

I am going to try and cut down of how much meat I eat, the specialist did say Chicken was fine.

Only fish I do eat is Cod & Tuna,.I'm happy to cut them out altogether.

As I say I don't drink alcohol at all, I do however drink a lot of squash.

Regarding the Co-codamol, I try and take no more than 2 per day. At present they are the only thing that helps.


I really want my gout specialist to let me have the injections, as I have read & heard they work wonders.
brothernero
 
Posts: 1421
Joined: Sun Sep 10, 2017 3:03 pm
Location: Essex

Re: Gout

Postby Clucking Bell on Sun Apr 29, 2018 2:04 pm

brothernero wrote:I really want my gout specialist to let me have the injections, as I have read & heard they work wonders.


If the colchicine/naproxen cocktail doesn't fix your attack within three or four hours, you need the injection as that's the only thing that will stop it. If your attacks are lasting a couple of days, they could be doing lasting damage. For example, the uric acid crystals can solidify into a tophus and, the only way that's coming out is with surgery.

Dunno how much BUPA is these days but, you might want to look at changing your doctor.
User avatar
Clucking Bell
 
Posts: 4413
Joined: Tue Jan 10, 2006 6:32 am
Location: Make piss ..... check ..... crossed arms .... check .... wife hates me ... result!!

Re: Gout

Postby brothernero on Sun Apr 29, 2018 2:29 pm

colchicine & naproxen just never really worked. But I want to try Colchine again.

My attack can last up to 3 months. This latest one which is unbearably painful, has now been going for nearly 3 weeks.

It's in my knee, my left heel, my right ankle and my entire right foot. My foot has swollen to over twice the size.
brothernero
 
Posts: 1421
Joined: Sun Sep 10, 2017 3:03 pm
Location: Essex

Re: Gout

Postby BSB1 on Tue May 01, 2018 12:41 pm

I started getting bouts of gout a couple of years ago. Didn't know what the hell it was first time when my foot swelled up to double it's size.

Got put on Colchicine but also started drinking coffee and taking Cherry capsules (Montmerency cherries from Holland and Barratt). That did the trick but I couldn't work out what had caused it. Eventually narrowed it down to certain hoppy beers, like Cafferies, Guinness, pale lagers etc so I stay away from those and I'm right as rain. If I do drink something suspect and feel it coming on, I hit the cherry capsules and coffee as soon as possible, even the next morning.

Gout can hit for different reasons but you should try an strip down your eating and drinking to really simple stuff (and I mean as far as just bread and water), and once you're in a clear period, just experiment and see if you can find what's kicking it off. Chop out red meats and just eat chicken, then do the reverse, then do the same through red/white fish, then vegetables. Stick to water only then test with squash's, tea, coffee etc. It might be a long process but hopefully you'll nail it.
User avatar
BSB1
 
Posts: 6874
Joined: Mon Jan 16, 2006 2:54 pm
Location: The only thing to fear, is running out of beer

Re: Gout

Postby hammerdivone on Tue May 01, 2018 1:02 pm

brothernero wrote:I have seen my GP so many times about this and also Gout specialists, But they cant seem to do anything.


Presumably when you say you have seen the Gout Specialists, this was at the same hospital/clinic?

This is usually what happens where you see different Registrars each time you go, or the same one time and time again, and they will often have standard protocols they have to follow.

Go back to your GP and insist, and you will have to insist quite strongly, to be referred to the leading Specialist Rheumatologist in the UK that practices in the NHS (you will have to research who this is). You have every right to see the best but GP's are reluctant to refer you outside of their own Health Authority, hence why you will have to be insistent.
User avatar
hammerdivone
 
Posts: 22270
Joined: Mon Jul 26, 2004 1:55 pm
Location: Somewhere between here and reality

Re: Gout

Postby EvilC on Tue May 01, 2018 1:30 pm

I had it once, I felt like I had flu. That was a year ago, I had it after eating Chinese food two days on the trot and having a few beers, I haven't had it since.

I don't have any advice beyond what you have got here, good luck BN :thup:
User avatar
EvilC
 
Posts: 9514
Joined: Sun Jul 25, 2004 5:54 pm
Location: In the street as the cold wind blows, in the ghetto...

Re: Gout

Postby brothernero on Tue May 01, 2018 1:42 pm

BSB1 Cheers Mate.

Been told by all the doctors and specialists that chicken is the one meat that does not affect gout. It's safe to eat.
I will try and get some of those cherry capsules and give them a try. After your post I did a little research and seems they are recommended,. Also drinking normal Cherry juice.

I have started taken Colchicine again, 1 Sunday night, 2 yesterday, 1 so far today. They don't really seem to do anything.


Hammerdivonne, I have seen countless GP's and 2 different specialists, but those 2 were from the same hospital (King G)

Funny enough I had already made my mind up about insisting to my GP that I see someone else and one of the best, because tbh the last specialist was awful and only just nodded along and mainly hummed & Rrrred.

He first told me to stop taking Allopurinol altogether because I had become Immune to it ("it's now just acts as a placebo to your body" was his words) then when I went back to see him 9 months later for the follow up he looked totally confused and said, try taking Allopurinol again. I was in with him for less than 5 minutes, Next Appointment with him is in August.


I have changed surgerys now, hopefully my new one will be better.


Again, thanks guys. I'm in a really bad way lately, not just pain wise, but head wise aswell now. You have helped me a lot and made me feel better. :thup:
brothernero
 
Posts: 1421
Joined: Sun Sep 10, 2017 3:03 pm
Location: Essex

Re: Gout

Postby brothernero on Tue May 01, 2018 1:55 pm

PS just called my local chemist and they don't do the cherry capsules, at the moment nether does my local Holland & Barrett.


I found these on-line, are they the right ones.

https://www.justvitamins.co.uk/montmore ... tract.aspx
brothernero
 
Posts: 1421
Joined: Sun Sep 10, 2017 3:03 pm
Location: Essex

Re: Gout

Postby BSB1 on Tue May 01, 2018 5:04 pm

These are the bad boys https://www.hollandandbarrett.com/shop/product/cherry-active-ltd-capsules-60083432

Not cheap mind. I'm glad the wife bought them cos I certainly wouldn't have shelled out for them :D

But in all seriousness, red berries of all sorts are supposed to be good but Cherries pip them all apparently.

You might find cheaper searching about.

Maybe ask about getting them on prescription from your doctor.

Another quick google and they're cheaper here but I've no idea of the brand or firm selling them. Only 750mg vs the H&B 870mg but 30 caps more. http://www.troohealthcare.com/p-520-cherry-go-montmorency-cherries-750mg-90-capsules.aspx?campaignid=348498397&adgroupid=25323728677&keyword=%2Bcherry%20%2Bcapsules&matchtype=b&creative=87093182437&device=c&network=g&adposition=1t2&gclid=EAIaIQobChMIpZuwpPHk2gIVDp3tCh1lZQqTEAAYAiAAEgLcHPD_BwE
User avatar
BSB1
 
Posts: 6874
Joined: Mon Jan 16, 2006 2:54 pm
Location: The only thing to fear, is running out of beer

Re: Gout

Postby BSB1 on Tue May 01, 2018 5:15 pm

brothernero wrote:BSB1 Cheers Mate.

Been told by all the doctors and specialists that chicken is the one meat that does not affect gout. It's safe to eat.
I will try and get some of those cherry capsules and give them a try. After your post I did a little research and seems they are recommended,. Also drinking normal Cherry juice.

I have started taken Colchicine again, 1 Sunday night, 2 yesterday, 1 so far today. They don't really seem to do anything.


Hammerdivonne, I have seen countless GP's and 2 different specialists, but those 2 were from the same hospital (King G)

Funny enough I had already made my mind up about insisting to my GP that I see someone else and one of the best, because tbh the last specialist was awful and only just nodded along and mainly hummed & Rrrred.

He first told me to stop taking Allopurinol altogether because I had become Immune to it ("it's now just acts as a placebo to your body" was his words) then when I went back to see him 9 months later for the follow up he looked totally confused and said, try taking Allopurinol again. I was in with him for less than 5 minutes, Next Appointment with him is in August.


I have changed surgerys now, hopefully my new one will be better.


Again, thanks guys. I'm in a really bad way lately, not just pain wise, but head wise aswell now. You have helped me a lot and made me feel better. :thup:


I was told by my docs that those Colchicine need to run for a few days but to only take them 7 days max, and you can get a bit of the old trots after about 3 days.When I had it bad the first time I didn't see any benefit until about 3-4 days in. But it was quicker if I caught it early. Just so we're clear, best double check with your docs because you might have different strength tablets or instructions than me and I'm no quack.
User avatar
BSB1
 
Posts: 6874
Joined: Mon Jan 16, 2006 2:54 pm
Location: The only thing to fear, is running out of beer

Re: Gout

Postby bubbles1966 on Tue May 01, 2018 9:50 pm

From last July

I've apparently got gout in my right thumb. Jesus. It feels like someone has simultaneously stuck a knife in it, wedged glass under the nail and set fire to it. b*stard thing. Headbanger


Only had the one attack that I've been diagnosed with, but get aches and pains in places that suggest I'm not far from it.

I'm slowly (very slowly, tbh) moderating my alcohol intake.
User avatar
bubbles1966
 
Posts: 44053
Joined: Sun Apr 29, 2007 10:01 pm
Location: ..the world is my lobster

Next

Return to The Snug

Who is online

Users browsing this forum: Google Adsense [Bot], westham,eggyandchips and 5 guests