A thread to discuss physical health issues

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Re: A thread to discuss physical health issues

Postby Tenbury on Sun Sep 23, 2018 9:32 am

Officer Dibble wrote:Mrs Dibble suffers with Crohn's Disease, she has been taking Humira steroid injections for the past 8 - 10 years.


Bizarrely, her Mum, who suffers with Psoriasis has been taking the same steroid injections for the past 5 years. The injections have manged the Psoriasis better than any of the cream she ever took.


I've had Crohns since 1986.Endless ops on my small bowel, either draining abcesses, or taking out sections of gut. I hate the steroid, and what it's done to my mental health, but I've got a new specialist @ the QE in Brum, and though I can't get to see her till my legs fixed, she's pretty positive.
Crohns,psoriasis, etc, all cra p immune system probs, but there you go.
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Re: A thread to discuss physical health issues

Postby Monkeybubbles on Sun Sep 23, 2018 9:55 am

Tenbury wrote:I've had Crohns since 1986.Endless ops on my small bowel, either draining abcesses, or taking out sections of gut. I hate the steroid, and what it's done to my mental health, but I've got a new specialist @ the QE in Brum, and though I can't get to see her till my legs fixed, she's pretty positive.
Crohns,psoriasis, etc, all cra p immune system probs, but there you go.


Thirty-odd years, that's awful, mate. There seems to be a steady and significant rise in auto immune diseases, and treatment seems to be a bit hit or miss. "Let's try this......no, ok, now let's try this.....".

Monkeybubbles Jr Jr (21 years old, genuinely nice kid, I think) has had severe Colitis for about four years and is now pretty much housebound. Now we've discovered in the last fortnight that he's developed a liver disease (primary sclerosing cholangitis), and the medical team can't say whether it's caused by his underlying condition or is a reaction to the various courses of medication they've tried over the years. Prognosis is that he'll need a transplant in the medium term future, and there's a good chance he won't live much past 40.

......and my dad passed away at 5 this morning, his bladder cancer had spread to his spine and organs, poor old sod was in a proper state so its a blessing that he's been released really. Happy days, eh?
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Re: A thread to discuss physical health issues

Postby hessa on Sun Sep 23, 2018 10:32 am

Monkeybubbles,
Sorry to hear of your dad's passing. Blessing or not, its still a tough one to deal with.
Genuinely sorry to hear what your lad is going through. It seems so unfair to be having to deal with what he is at such a young age. Hope that his situation and prognosis improves.
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Re: A thread to discuss physical health issues

Postby Tenbury on Sun Sep 23, 2018 10:34 am

Christ's sake mate , sorry to hear that.Go easy on yourself, as much as you can, it's the only way to get through a really hard time.
( your lad's young enough to benefit from the new stuff they're doing with. Crohns and colitis, things seem to have improved over the last 5 years or so, my new doc in Brum tells me there's quite a lot of new treatments.....let's hope so.)

Again, sorry to hear about your old man.
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Re: A thread to discuss physical health issues

Postby mushy on Sun Sep 23, 2018 10:40 am

Christ Monkeybubbles, that sounds really tough.
Will raise a glass to your poor old man today.
Hope you are ok
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Re: A thread to discuss physical health issues

Postby The Old Man of Storr on Sun Sep 23, 2018 12:17 pm

MB - I've sent you a pm , but I was too concerned about your boy I forgot to mention your dear old Dad .

It sounded to me that he was a lovely old fella with a great sense of humour - bit like yourself .
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Re: A thread to discuss physical health issues

Postby The Old Man of Storr on Sun Sep 23, 2018 12:30 pm

My Dad was diagnosed with diverticulitis but in later life he couldn't go out anywhere without needing the loo - in later life my Mam was fitted with a colostomy bag - hopefully it's something I'm not going to inherit .

I've got chronic eczema / asthma - had my right kidney removed aged 13 - developed gout in my 30s - had an operation on my spine in 2011 , was told I had the spine of a 90 year old , thanks , Doc - contracted sepsis in my mid 50s , Doctors told Jen to measure me up for a coffin [ not their exact words :) ] , contracted pneumonia upon coming home then in 2016 I had my gallbladder removed .

I'm considering cashing in both pensions as the odds of living to my late 90s are stacked against me . :lol:
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Re: A thread to discuss physical health issues

Postby Monkeybubbles on Sun Sep 23, 2018 5:46 pm

The Old Man of Storr wrote:MB - I've sent you a pm , but I was too concerned about your boy I forgot to mention your dear old Dad .

It sounded to me that he was a lovely old fella with a great sense of humour - bit like yourself .


Less of the "old', you git :D
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Re: A thread to discuss physical health issues

Postby The Old Man of Storr on Sun Sep 23, 2018 8:05 pm

Monkeybubbles wrote:
Less of the "old', you git :D


I meant you inherited your sense of humour from your Dad not that you were old too -

Anyone who's younger than me is young coz I ain't old . :)
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Re: A thread to discuss physical health issues

Postby Samba on Mon Sep 24, 2018 12:38 am

Monkeybubbles wrote:......and my dad passed away at 5 this morning, his bladder cancer had spread to his spine and organs, poor old sod was in a proper state so its a blessing that he's been released really. Happy days, eh?

F**king 'ell, Mb, you know how to put things in perspective for others.
Sorry to hear about your sons latest health news & the loss of your Dad, mate.
Life is s**t.
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Re: A thread to discuss physical health issues

Postby Samba on Mon Sep 24, 2018 12:42 am

The Old Man of Storr wrote:I've got chronic eczema / asthma - had my right kidney removed aged 13 - developed gout in my 30s - had an operation on my spine in 2011 , was told I had the spine of a 90 year old , thanks , Doc - contracted sepsis in my mid 50s , Doctors told Jen to measure me up for a coffin [ not their exact words :) ] , contracted pneumonia upon coming home then in 2016 I had my gallbladder removed .

...and you're still fitter than Andy Carroll, TOMoS!
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Re: A thread to discuss physical health issues

Postby Hampshire Hammer on Mon Sep 24, 2018 9:00 am

Monkeybubbles wrote:......and my dad passed away at 5 this morning, his bladder cancer had spread to his spine and organs, poor old sod was in a proper state so its a blessing that he's been released really. Happy days, eh?

Sorry to hear about your dad MB, condolences to all your family. Also hope that they can find something to help your son.
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Re: A thread to discuss physical health issues

Postby Hampshire Hammer on Mon Sep 24, 2018 9:14 am

DrVenk wrote:Just reading the mental health thread, and it seems quite a few of us have skin complaints (notably psoriasis and/or eczema).

I've had Psoriasis since I was 13 (56 now), at times it has covered large sections of my body and the soles of my feet (which is a complete b*stard). I remember in my teens making friends with a girl who also had it, much worse for a girl - especially as she had patches on her face and fanny.

Working in the middle east showed me one way to clear it, plenty of sun and salt water, could clear my skin for a couple of years at a time. I have a mate who goes to the dead sea for a holiday every 2 to 3 years and has been clear for years.

In my thirties I started getting finger and neck pains, GP at the time just shrugged it off as "you must have done something" for 2 years. It wasn't until I moved house and signed on with a new GP that virtually his first words were "how long have you had arthritis?". Turns out I had psoriatic arthritis, which loves small joints (fingers and toes) and the spine the old GP should have known that this was a possible complication. I have a number of finger joints that are fused, plus two fused vertebra in my neck so it doesn't turn.

They have now decided that I have Ankylosing spondylitis, which is basically arthritis of the spine. The good part of this is that the drug that I inject for this (Humira) has completely cleared my psoriasis as well keeping the stiffness under control.

I do daily exercises to keep joints mobile, as well as pilates and playing badminton at least once a week.
Last edited by Hampshire Hammer on Mon Sep 24, 2018 2:53 pm, edited 1 time in total.
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Re: A thread to discuss physical health issues

Postby pablo jaye on Mon Sep 24, 2018 1:15 pm

MB - sorry to hear about your Dad, no doubt you have some good memories of him and no doubt he was proud of you.
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Re: A thread to discuss physical health issues

Postby DrVenk on Mon Sep 24, 2018 3:21 pm

MB - my condolences to you and your family mate. I lost my father the same way. Hope you and your loved ones are coping ok.

Hampshire Hammer wrote:plenty of sun and salt water


Ah, yes, thanks HH - UV treatment :thup: You can buy UV lamps, but they are pricey and dangerous if you don't quite monitor strength of UV and time under the lamp. Still, just re-checked the trials - definitely effective. Sea salt scrubs I swear by. Higher the magnesium content, the better. Good to hear your treatment is working. And on that...

Officer Dibble and Tenners - ever come across:
Hampshire Hammer wrote:Humira
??? It treats Chrohns.
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Re: A thread to discuss physical health issues

Postby Officer Dibble on Mon Sep 24, 2018 4:29 pm

Hampshire Hammer wrote:Humira


DrVenk wrote:Officer Dibble and Tenners - ever come across: ??? It treats Chrohns.


See my post at top of the page, wife has been taking it for years for her Crohns, her Mum takes it for her Psoriasis.
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Re: A thread to discuss physical health issues

Postby DrVenk on Mon Sep 24, 2018 4:53 pm

Ah sorry mate, trying to read too much today :P
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Re: A thread to discuss physical health issues

Postby Tenbury on Mon Sep 24, 2018 5:55 pm

And I think that's what this new , rather splendid in a sort of mature way, doc @the Queen Elizabeth wants to wants to give me too ( fnarrr, fnarr, etc).
That's in the future, right now,if it I could find a doc that could fix a busted hip without f**king it up I'd give him/her a big kiss.
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Re: A thread to discuss physical health issues

Postby Briggsy on Mon Sep 24, 2018 8:59 pm

I've had psoriasis & IBS-D for over 10 years now. My psoriasis used to absolutely terrible. You couldn't see a white patch on my body as I was completely red. I'd get on the bus or the train & would have dead skin everywhere. My old boss used to make me vaccum the office every day because I left a ton of dead skin everywhere.

Now it's not bad. I've significantly cut down stress & improved my diet & it's hardly even noticable anymore. I still need to manage with a range of creams, dovobet, eumovate, Nizerol shampoo. I also need to keep my hair short, as it allows me to manage my scalp much better which is key. I'm looking forward to going bald, if I'm honest. I also manage with Vitamin D in and ways possible, food, suppliments & getting out in the sun.

My IBS-D is a whole other monster. People think it's just a bit of bloating but it's not. Constant bowel movements, the worst nausea you can ever imagine - every day, I can't explain how bad it is. I've basically had food posioning every day for 10+ years, Fatigue to the point where I'm passing out on my desk. I can get by ok if I get 14+ hours sleep. I take a medication called amitriptyline, 25mg, which helps significantly but is a bit of a dirty drug. I also take 1 probitoic in the morning, 2 digestive enzymes with each meal, l glumaine. I stick to a pretty strick gluten free, dairy free diet with a range of meats, vegs, fruit & nuts. I blend a lot of food up now, but even a kale smoothie seems to do me over. I do drink alcohol as well though, but I probably shouldn't.

I have pretty much a stress free job, good life with loving family & friends. No debt, no problems & I'm a happy person. Unforuntately health wise, I'm not even 30 years old yet and I'm basically completely fu****
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Re: A thread to discuss physical health issues

Postby Burningaham on Thu Oct 04, 2018 7:28 pm

Ive done a lot this year. I made it to 50. I drove a tank, flew in a sopwith camel, got my 62 lambretta on the road - all sorts.

Tomorrow, about 9am i am going to top all that.
I am being circumcised.

I’ve had something called BXO, it’s not been very nice..

Warps mum is performing the operation.
Not sure if I should ask for it back after it’s been cut off.
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